Nine Suggestions for the Professional Support of Persons With Amyotrophic Lateral Sclerosis as Recounted by Surviving Spouses: A Phenomenological Study In this report, we describe the professional support preferred by the surviving family members of people with amyotrophic lateral sclerosis (ALS). The participants in this study were six surviving spouses and one daughter of people with ALS who had used high- and low-technology AAC strategies to communicate. These informants shared ... Article
Article  |   June 01, 2013
Nine Suggestions for the Professional Support of Persons With Amyotrophic Lateral Sclerosis as Recounted by Surviving Spouses: A Phenomenological Study
Author Affiliations & Notes
  • Miechelle McKelvey
    Department of Communication Disorders, University of Nebraska Kearney, Kearney, NE
  • David Beukelman
    Department of Special Education and Communication Disorders, University of Nebraska, Lincoln, Lincoln, NE
  • Norimune Kawai
    The Center for Special Needs Education Research and Practice, Graduate School of Education, Hiroshima University Higashi-HiroshimaHiroshima, Japan
  • David Evans
    Department of Speech Pathology & Audiology, University of South Alabama, Mobile, AL
  • Disclosure: Miechelle McKelvey has no financial or nonfinancial relationships related to the content of this article.
    Disclosure: Miechelle McKelvey has no financial or nonfinancial relationships related to the content of this article.×
  • Disclosure: David Beukelman has no financial or nonfinancial relationships related to the content of this article.
    Disclosure: David Beukelman has no financial or nonfinancial relationships related to the content of this article.×
  • Disclosure: Norimune Kawai has no financial or nonfinancial relationships related to the content of this article.
    Disclosure: Norimune Kawai has no financial or nonfinancial relationships related to the content of this article.×
  • Disclosure: David Evans has no financial or nonfinancial relationships related to the content of this article.
    Disclosure: David Evans has no financial or nonfinancial relationships related to the content of this article.×
Article Information
Augmentative & Alternative Communication / Special Populations / Articles
Article   |   June 01, 2013
Nine Suggestions for the Professional Support of Persons With Amyotrophic Lateral Sclerosis as Recounted by Surviving Spouses: A Phenomenological Study
SIG 12 Perspectives on Augmentative and Alternative Communication, June 2013, Vol. 22, 120-124. doi:10.1044/aac22.2.120
SIG 12 Perspectives on Augmentative and Alternative Communication, June 2013, Vol. 22, 120-124. doi:10.1044/aac22.2.120
Abstract

In this report, we describe the professional support preferred by the surviving family members of people with amyotrophic lateral sclerosis (ALS). The participants in this study were six surviving spouses and one daughter of people with ALS who had used high- and low-technology AAC strategies to communicate. These informants shared the lived experience with their partners and parent with ALS from diagnosis to death and provided nine suggestions for the professional support of people with ALS.

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